The Sickle Cell and Thalassaemia All Party Parliamentary Group (SCTAPPG) in collaboration with the Sickle Cell Society have launched The experiences of those living with sickle cell or caring for someone in the COVID-19 pandemic survey via this link.
This survey aims to capture the experiences of those living or caring for someone with sickle cell disorder during the COVID-19 pandemic. The objective will be to use this data to determine whether those living/caring for someone with sickle cell disorder are receiving all the information required, and whether the guidance is suitable for their circumstances.