The Sickle Cell and Thalassaemia All Party Parliamentary Group (SCTAPPG)​ in collaboration with the Sickle Cell Society have launched The experiences of those living with sickle cell or caring for someone in the COVID-19 pandemic survey via this link.

This survey aims to capture the experiences of those living or caring for someone with sickle cell disorder during the COVID-19 pandemic. The objective will be to use this data to determine whether those living/caring for someone with sickle cell disorder are receiving all the information required, and whether the guidance is suitable for their circumstances.